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Beacon Stories
From stargazing to bird watching, Michael has been an enthusiast of all things science from the age of 12. When Michael was diagnosed with retinitis pigmentosa at 30 years old, he knew he wasn’t going to give up his dream of becoming a record-setting birder. In his own words, Michael shares how he’s overcome his vision loss and continued to pursue his birding passions with “birding-by-ear.”
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South Florida Scramble for Sight: A Day of Golf & Games
- May 11, 2026
- 11:00 a.m. (EST)
- 10001 Old Club Rd, Parkland, FL 33076
Signature EventJoin us for a fun-filled day of golf, games, and friendly competition that unites our community in support of the Foundation Fighting Blindness’ mission to drive treatments and cures for blinding diseases.
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SparingVision Completes Dosing in Gene-Agnostic Therapy Trial for Retinitis Pigmentosa (RP)
Research NewsNovel neuroprotective approach could benefit RP patients regardless of genetic mutation
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Wet AMD Treatment Susvimo Preserves Vision for Five Years in Phase 3 Clinical Trial
Research NewsSusvimo is an FDA-approved treatment that continuously delivers drug through a tiny, implanted capsule
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Genentech to Re-Introduce Susvimo for Wet AMD
Research NewsFDA-approved in 2021, the tiny implantable capsule provides sustained delivery of treatment, but was recalled in 2022.
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Belite Bio Launching Phase 3 Clinical Trial for Stargardt Disease Drug
Research NewsThe company’s drug is designed to reduce accumulation of toxins that cause vision loss.
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ReNeuron Not Continuing Clinical Development of Cell-Based Therapy for RP
Research NewsCompany seeks to out-license its retinal progenitor therapy to a partner
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Biogen’s Phase 2/3 Clinical Trial for XLRP Gene Therapy Doesn’t Meet Primary Endpoint
Research NewsMore details from the clinical trial will be reported at a later date
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AGTC Announces Results for Achromatopsia Gene Therapy Clinical Trials
Research NewsThe company will continue enrolling younger patients in higher dosing groups.
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ARVO 2019: Emerging Drug for RP Evaluated in Safety & Tolerability Study
Research NewsFrancois Paquet-Durand, PhD, chief scientific officer at the company Mireca, discusses an emerging drug for retinitis pigmentosa, and other inherited retinal diseases.
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