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The Foundation's 5 Most Asked Questions About Clinical Trials
Research NewsWhat you need to know (and what to expect) about clinical trials.
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How an Assistive App Developer is Revolutionizing Accessibility
Beacon StoriesMeet Rebecca Rosenberg, the founder of ReBokeh Vision Technologies, whose journey from engineer to entrepreneur may have been guided by fate. Diagnosed with oculocutaneous albinism (OCA1) at a young age, Rebecca faced numerous obstacles due to the lack of assistive technology tailored to her unique needs. This inspired her to create an app that would revolutionize the world of assistive technology for those with moderate low vision.
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The Benefits of Online Therapy Go Beyond Convenience
WellnessThere has been significant research exploring online versus in-person therapy — and countless online therapy sessions — and the news is overwhelmingly good.
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Beacon Stories
In honor of the upcoming Mother’s Day, New York Times, USA Today, and Wall Street Journal bestselling author Jennifer Probst is sharing her personal story of her son’s diagnosis with Stargardt disease.
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The Beauty in Embracing Yourself
Beacon StoriesAward-nominated recording artist Lachi has collaborated with some of the biggest names in the industry with millions of streams on her music. But with all her many amazing musical accomplishments, it wasn’t until a few years ago that she fully embraced herself as a legally blind artist who identifies with the disability community as closely as she does with music.
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Persevering to Success with the Support of Family, Friends, and Faith
Beacon StoriesA story about living with retinitis pigmentosa.
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Atsena’s LCA-GUCY2D Gene Therapy Improves Vision in Phase 1/2 Clinical Trial
Research NewsThe company is planning to move the emerging treatment into a pivotal trial
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Are You on the Clinical Trial Radar Screen?
Research NewsTherapy developers use the My Retina Tracker Registry to recruit for human studies of emerging therapies
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Hannah Dreams Big Despite Vision Loss
Beacon StoriesHannah has always had dreams of starting her own fashion line. And despite being diagnosed with retinitis pigmentosa at the age of 15, she recently began an intimate company, Watson & Wilma.
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Disease
Often diagnosed in childhood or adolescence, Stargardt disease is an inherited form of macular degeneration causing central vision loss. The condition is sometimes referred to as juvenile or early onset macular degeneration.
