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Displaying 11–20 of 134 resources results
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Feb 5, 2024
Foundation’s Reach Inspires Partnership for Nixon Family
After Janine’s diagnosis of an IRD caused by a mutation of the PRPH2 gene, she and her husband set out to learn and help all they could. So they started working with the Foundation Fighting Blindness and have launched the ‘PRPH2 and Associated Retinal Degenerations Program.’
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Jan 22, 2024
Blind Advocate Triumphs as a Hockey Pioneer
Josh Schneider is a former teacher and student-athlete whose life took an unexpected turn due to an optic nerve condition. Years after receiving his diagnosis, Josh transformed his passion for sports into a platform for advocacy. Today, he thrives as a blind hockey player, defying expectations and leading two foundations committed to raising awareness and providing support to blind hockey players.
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Dec 4, 2023
The Inspiring Journey of an Endurance Athlete with Cone-Rod Dystrophy
Diagnosed with cone-rod dystrophy in his youth, Dan Berlin has defied all odds by becoming a global force in endurance sports and entrepreneurship. As an accomplished athlete, he has not only dominated marathons across the globe but also co-founded the Team See Possibilities organization, offering support to youth with blinding diseases.
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Nov 13, 2023
IRD Community Loses Usher Syndrome Research Trailblazer William Kimberling, PhD
Dr. Kimberling helped discover the identification and characterization of several genes that cause Usher syndrome.
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Nov 6, 2023
NY Researcher’s App Transforms Commuting for the Visually Impaired
John-Ross Rizzo, a dedicated New York-based researcher, was confronted with life-altering news at a young age when he was diagnosed with choroideremia. Driven by the obstacles he faced due to his condition, he now stands as a key figure leading the development of advanced assistive technology, with the goal of reshaping the daily commutes of those with low vision and blindness.
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Oct 16, 2023
Finding the “Keys to the Kingdom”
Tricia Waechter, who has retinitis pigmentosa (RP), refers to her white canes as the “keys to the kingdom.” Using a white cane has opened a whole new world for Tricia, and that is why her company, Blind Girl Designs, includes white canes on many of their apparel designs.
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Sep 18, 2023
How an Assistive App Developer is Revolutionizing Accessibility
Meet Rebecca Rosenberg, the founder of ReBokeh Vision Technologies, whose journey from engineer to entrepreneur may have been guided by fate. Diagnosed with oculocutaneous albinism (OCA1) at a young age, Rebecca faced numerous obstacles due to the lack of assistive technology tailored to her unique needs. This inspired her to create an app that would revolutionize the world of assistive technology for those with moderate low vision.
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Aug 21, 2023
Life as a Teen with Retinitis Pigmentosa
At a mere 15 years old, Ava Ruggiero’s world shifted when she received a diagnosis of retinitis pigmentosa. As Ava continues to find balance as a student and athlete, she discusses the challenges of navigating her diagnosis alongside her parents, Joseph and Stephanie.
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Aug 7, 2023
Talented Singer Overcomes Blindness with the Power of Melodies
Sarah Hardwig’s love for music began from her earliest days, creating a purpose that would sustain even in the face of adversity. Diagnosed with Leber congenital amaurosis (LCA) before her first birthday, the young artist continues to defy all odds and utilize her voice as a powerful beacon of hope.
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Jul 10, 2023
Blind Author with Usher Syndrome Ignites the Literary World
At the age of 22, Michael Garrigan received a life-changing diagnosis of Usher syndrome type 2. His vision gradually deteriorated over the years, and by the age of 45, he faced the reality of being legally blind. Determined to share his story and shed light on the capacity to triumph over darkness, Michael penned a remarkable memoir, “Ushered Out of Darkness,” in which he invites readers into his most vulnerable life moments and victories.