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Displaying 121–130 of 147 resources results
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Jul 27, 2018
Persevering to Success with the Support of Family, Friends, and Faith
A story about living with retinitis pigmentosa.
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Dec 17, 2017
“I try not to get my hopes up too much, but I never lose hope; I’m determined. I just want to see my son’s face, see him get married, & see my grandchildren. I encourage everyone with a retinal disease to get a genetic test & to never ever give up hope.“
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Oct 9, 2017
Joe Caruso, founder of FOCUS Wine Foundation, knows life both with and without the ability to see. His first memory is sitting in the waiting room with his mother at the Scheie Eye Institute in Philadelphia.
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Sep 20, 2017
Heather Presnar’s Story: Living with Stargardt Disease
When you’re the catcher, the ball always comes to you. Heather Presnar wouldn’t have had it any other way.
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Aug 7, 2017
Sight and Song: The Christian Guardino Story
Christian Guardino has been singing for as long as he can remember; it’s the seeing that is something new.
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Jul 29, 2016
Artist with Usher Syndrome Excited to Register on My Retina Tracker to Drive Retinal Research
Artist Dana Simon describes her experience with My Retina Tracker, a free and secure online registry for people with inherited retinal diseases.
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Jun 27, 2016
Two Philanthropic Brothers — Selling Luxury Casual Wear for the Good of Retinal Research
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Apr 15, 2015
An interview with Louis Posen, record label founder and retinitis pigmentosa patient.
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Mar 20, 2015
People with retinal disease describe their experiences “not looking blind.”