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Displaying 61–70 of 395 diseases results
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Feb 14, 2023
A Love Without Limits: How John and Min Conquer Blindness Together
In honor of Valentine’s Day, the Foundation Fighting Blindness brings you a special edition of our Beacon Story series, which covers the unique journey of visually impaired couple John and Min.
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Feb 10, 2023
Eye on the Cure Podcast – Episode 40: Rebecca Alexander
February 10, 2023. Rebecca Alexander talks candidly with host Ben Shaberman about her journey with Usher syndrome. Reflecting on her own experiences, she discusses how people with vision loss and their loved ones can practice good emotional care and advocate for their needs.
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Jan 25, 2023
Foundation Fighting Blindness to Host PRPH2 and Associated Retinal Diseases Workshop
Session to have special translational research emphasis on PRPH2 and inherited macular dystrophies.
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Jan 23, 2023
Birding Blind: Identifying Birds by Song
Martha Steele has been birding for over 30 years, but the way in which she birds has changed over time. Martha has Usher syndrome, with her central vision declining rapidly in the early 2000s and receiving her first cochlear implant in 2010. Now she birds entirely by ear and has learned the songs of about 150 bird species.
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Jan 20, 2023
Eye on the Cure Podcast – Episode 39: Paul Bernstein, MD, PhD
January 20, 2023. Paul Bernstein, MD, PhD, from the Moran Eye Center, University of Utah, and a member of the Foundation’s Scientific Advisory Board talks to host Ben Shaberman about his clinical practice for retinal disease patients
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Jan 9, 2023
Fearless Sister Duo Finding Hope
April LuFriu and Melissa Escobio are sisters and best friends who do just about everything together, including having retinitis pigmentosa (RP).
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Jan 6, 2023
The Retinal Degeneration Fund invests in a $78M Series B for Perceive Biotherapeutics
The investment supports the clinical development of two novel programs, both with the aim of being protective against vision loss.
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Jan 3, 2023
Opus Genetics Acquires Rights to Gene Therapies for BEST1 and RP (RHO)
The company plans to seek clinical trial authorization for the BEST1 gene therapy during the second half of 2023
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Dec 16, 2022
Eye on the Cure Podcast – Episode 37: Rando Allikmets, PhD
December 16, 2022. Rando Allikmets, PhD, talks to host Ben Shaberman.
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Dec 12, 2022
Resourceful Advocate for Research
Manorthia was diagnosed with retinitis pigmentosa (RP) when she was 22 years old but didn’t start experiencing considerable vision loss until years later. Once she began to notice her vision deteriorating more rapidly, she reached out to the Foundation Fighting Blindness to get involved with the blindness community.