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Live Stream: Dry AMD-Patient Focused Drug Development
The purpose of this meeting is to share with key FDA officials and other stakeholders the journey of dry AMD patients and their caregivers across the lifespan, current unmet needs, prognosis, and current standards of care. We invite you, people living with dry AMD and caregivers, to participate in a live discussion with drug developers, researchers, and regulators, as well as healthcare policy makers and payors for purposes of informing clinical trial design and benefit-risk decision making for evaluating and approving treatments for this disease.
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The Foundation encourages individuals and teams from all scientific disciplines that have ideas geared toward eliminating inherited retinal degenerative diseases to apply to a grant or award program. Individuals from underrepresented racial, ethnic, and gender groups, as well as individuals with disabilities, are always encouraged to apply.
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Jan 8, 2024
Leber Congenital Amaurosis Research Advances
Recent developments in research on Leber congenital amaurosis
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Jan 8, 2024
Age-Related Macular Degeneration Research Advances
Recent developments in research on age-related macular degeneration.
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Jan 8, 2024
Retinitis Pigmentosa Research Advances
Recent developments in research on retinitis pigmintosa.
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Jan 8, 2024
Stargardt Disease Research Advances
Recent developments in research on Stargardt disease
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Jan 8, 2024
Usher Syndrome Research Advances
Recent developments in research on Usher Syndrome.
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Jan 5, 2024
Eye on the Cure Podcast | Episode 59: Dr. Robert MacLaren
Dr. Robert MacLaren, a world-renowned retinal surgeon, clinical trial investigator, and research lab leader at the University of Oxford, talks to host Ben Shaberman about the successes and challenges in retinal gene therapy development and clinical trials, as well as advances in robotics for improving retinal surgery outcomes.
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Dec 15, 2023
Eye on the Cure Podcast | Episode 58: Jason Comander
Jason Comander, Md, PhD, clinical researcher, surgeon, and director of the Inherited Retinal Disease Disorders Service at Mass Eye and Ear, talks to host Ben Shaberman about his administration of LUXTURNA gene therapy to RPE65 patients, his team’s re-analysis of vitamin A therapy for retinitis pigmentosa, and passion for retinal research and patient care.
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Dec 11, 2023
Known as antisense oligonucleotides, the treatments performed encouragingly in ProQR’s clinical trials