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Apr 8, 2026
Illuminating the Future: Highlights from Investing in Cures Summit 2026
Foundation NewsAt ICS 2026 in Boston, leading researchers, clinicians, and industry pioneers shared the latest advances in gene therapy, precision genetic medicine, and gene-agnostic approaches for inherited retinal diseases.
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Apr 7, 2026
Recording Available: Insights Forum | Thursday, March 26, 2026
Foundation NewsThe Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on March 26, 2026.
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Mar 26, 2026
VeonGen Reports Promising Clinical Progress for Stargardt Disease Gene Therapy
Research NewsVG801 shows sustained vision improvements through 12 months with favorable safety profile
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Mar 24, 2026
Sumitomo Pharma Receives FDA Orphan Drug Designation for Retinitis Pigmentosa Treatment
Research NewsPotential cell therapy, DSP-3077, gains special regulatory status to support development for inherited retinal disease.
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Mar 16, 2026
Foundation NewsA new partnership with A Race Against Blindness brings a spring 2026 luxury vehicle fundraiser to support people living with RP and Bardet-Biedl syndrome.
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Mar 12, 2026
Foundation Fighting Blindness Appoints Jason Morris as Board Chair
Foundation NewsLongtime Board member, parent advocate, and business executive slated to guide next phase of the organization’s growth and mission, effective immediately.
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Mar 11, 2026
Octant Bio Begins Clinical Testing Oral Treatment for Rhodopsin-Related Retinitis Pigmentosa
Research NewsFirst-of-its-kind small molecule therapy targets protein misfolding at the root of RHO-adRP
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Mar 2, 2026
Opus Genetics Reports Promising Early Results from BEST1 Gene Therapy Trial
Research NewsFirst patient shows vision improvements with a good safety profile.
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Feb 25, 2026
Foundation NewsThe event will feature presentations from leading experts in stem cell therapies, cellular imaging, and the latest clinical developments in the treatment of inherited retinal diseases and age-related macular degeneration.
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Feb 23, 2026
Honoring Karen Petrou: A Visionary Leader and Champion for the Community
Foundation NewsRemembering Karen Petrou, whose strategic vision, personal courage, and unwavering commitment helped shape the future of inherited retinal disease research.