The Stargardt’s Summit
Thursday, February 29th, 2024, 1:00 pm – 5:00 PM (EST)
The summit will have three panels:
- Patient Panel – Kira Baldonado, Vice President of Public Health and Policy at Prevent Blindness, will guide a conversation with panelists Chloé Duplessis, Charlie Collins, and Jack Duffy-Protentis who will share their personal experiences with Stargardt’s.
- Medical/Research Panel – Ben Shaberman, Vice President of Science Communications at Foundation Fighting Blindness, will guide a conversation with panelists Dr. Jason Comander M.D., Dr. Peter Zhao M.D., and Dr. Abigail Jensen Ph.D on the latest Stargardt’s research and the biological basis of the disease.
- Accessibility and Adaptive Strategies Panel – Tina Laffer, Director of Outreach and Community Engagement at The Carroll Center for the Blind, will guide a conversation with panelists Sam Seavey and Bob McGillivray to explore the latest tools and strategies to navigate the world with Stargardt’s.
This year’s event is hosted by The Carroll Center for the Blind, in partnership with Foundation Fighting Blindness, Prevent Blindness, and The Blind Life. Sponsored by Alkeus.