Newly diagnosed? Connect with the Foundation Fighting Blindness for education, managing your condition, and finding support.

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Newly Diagnosed?

The diagnosis of a blinding disease is often overwhelming. But if you or a loved one has been recently diagnosed with an inherited retinal disease or age-related macular degeneration (AMD), getting connected to the Foundation Fighting Blindness is a great way to get educated, better manage your condition, and find support.

Here are a few helpful steps.
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Patient Resources

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Eye Care Professional Homepage

Patient Education Resources

The Foundation’s website provides comprehensive information about inherited retinal diseases and the latest news on clinical trials for emerging therapies.

The Foundation also holds a variety of in-person meetings and events (community-based, regional, national), as well online webinars and teleconferences to educate patients and families about their conditions and the research underway to save and restore vision.

Patients and families can sign-up to receive notifications of these events and research updates.

Order Patient Information Materials for your Office

Resource Download

Download Newly Diagnosed Insert

Download Newly Diagnosed Insert (PDF, 1.28 MB)

Resource Download

Download Newly Diagnosed Insert (Spanish Version)

Download Newly Diagnosed Insert (Spanish Version) (PDF, 1.37 MB)

Resource Download

Download My Retina Tracker Genetic Testing Program Brochure

Download My Retina Tracker Genetic Testing Program Brochure (PDF, 878 KB)

Resource Download

Download My Retina Tracker Genetic Testing Program Brochure (Spanish Version)

Download My Retina Tracker Genetic Testing Program Brochure (Spanish Version) (PDF, 1.09 MB)

Please feel free to contact us for any additional information or materials you may want.

To order materials, send an e-mail to info@fightingblindness.org or call 1-888-394-3937.

Local Chapters

Getting connected with a Foundation chapter is a great way for patients and families to stay informed about ongoing research for treatments and meet other people and families affected by retinal degenerative diseases.

The Foundation maintains a network of 40 chapters around the U.S. and holds seminars and meetings that provide information on research, low vision resources, and other helpful topics.

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Foundation Fighting Blindness homepage

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation is a beacon for those affected by these blinding diseases. Join the fight and help us accelerate our mission.

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Foundation Fighting Blindness

Phone: (800) 683-5555

6925 Oakland Mills Road, #701, Columbia, MD 21045.

Donations can be mailed directly to:
Foundation Fighting Blindness, P.O. Box 45740, Baltimore, MD 21297-5740

Retinal Education

  • Information for Newly Diagnosed
  • An Eye on Education Video Series
  • Achromatopsia
  • Bardet-Biedl Syndrome
  • Best Disease
  • Choroideremia
  • Leber Congenital Amaurosis
  • Macular Degeneration
  • PRPH2-Associated Disease
  • Retinitis Pigmentosa
  • Refsum Disease
  • Stargardt Disease
  • Usher Syndrome
  • X-Linked Retinoschisis (XLRS)
  • Other Retinal Conditions
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  • Stories & Resources
  • Genetic Testing
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© 2023 Foundation Fighting Blindness, All Rights Reserved. The Foundation Fighting Blindness is a qualified 501(c)(3) non-profit organization and all donations are tax deductible. EIN 23-7135845.