Patient Education Resources
The Foundation’s website provides comprehensive information about inherited retinal diseases and the latest news on clinical trials for emerging therapies.
The Foundation also holds a variety of in-person meetings and events (community-based, regional, national), as well online webinars and teleconferences to educate patients and families about their conditions and the research underway to save and restore vision.
Patients and families can sign-up to receive notifications of these events and research updates.
Order Patient Information Materials for your Office
Please feel free to contact us for any additional information or materials you may want.
To order materials, send an e-mail to firstname.lastname@example.org or call 1-888-394-3937.
Getting connected with a Foundation chapter is a great way for patients and families to stay informed about ongoing research for treatments and meet other people and families affected by retinal degenerative diseases.
The Foundation maintains a network of 40 chapters around the U.S. and holds seminars and meetings that provide information on research, low vision resources, and other helpful topics.