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Displaying 61–70 of 909 results
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Chloe’s Creative Journey with Vision Loss
Beacon StoriesChloé Duplessis is a legally blind digital collage artist in Denver, Colorado. At 39 years old, Chloé was diagnosed with Stargardt disease, which was a pivotal point in her creative journey to becoming a full-time artist and owner of Duplessis Art.
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Eye on the Cure Podcast | Episode 50: Rachel Huckfeldt, MD, PhD
Foundation PodcastsJuly 21, 2023. Rachel Huckfeldt, MD, PhD, a clinical researcher and assistant professor of ophthalmology at Mass Eye and Ear, talks with host Ben Shaberman about caring for patients with inherited retinal diseases (IRD), the challenges and opportunities with clinical trials, and the educational and professional journey that led her to the IRD research field.
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PRPH2 and Associated Retinal Diseases (PARD) Science Award
Landing PageOverview and application instructions for the PRPH2 and Associated Retinal Diseases (PARD) Science Award
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PYC Doses First Patient in Clinical Trial of RNA Therapy for RP11 (PRPF31 Mutations)
Eye On the Cure Research NewsThe emerging RNA therapy is designed to boost expression of the PRPF31 protein
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Blind Author with Usher Syndrome Ignites the Literary World
Beacon StoriesAt the age of 22, Michael Garrigan received a life-changing diagnosis of Usher syndrome type 2. His vision gradually deteriorated over the years, and by the age of 45, he faced the reality of being legally blind. Determined to share his story and shed light on the capacity to triumph over darkness, Michael penned a remarkable memoir, “Ushered Out of Darkness,” in which he invites readers into his most vulnerable life moments and victories.
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Eye on the Cure Podcast | Episode 49: Alex Cohen, PhD
Foundation PodcastsJune 30, 2023. Alex Cohen, PhD, a marketing professor with retinitis pigmentosa, talks with host Ben Shaberman about his career in the hospitality industry and launch of Accessible Pharmacy, a comprehensive pharmacy service for people with vision loss.
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Eye On the Cure Research News
The five-year grant will advance the emerging treatments toward clinical trials
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Disease
Geographic atrophy (GA) is an advanced form of dry age-related macular degeneration (AMD) that leads to progressive vision loss.
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Why Bob and Lupe Reintsma are Supporting the Foundation Fighting Blindness
Personal StoriesBob Reintsma has been passionate about finding cures for inherited retinal diseases for most of his life. Now, he and his wife, Lupe, want to make sure the work continues long after they’re gone. And they’re doing it in partnership with Foundation Fighting Blindness.
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Dan Day - Making a Difference Now and for Future Generations
Personal Stories“Because I have seen such tremendous progress over the years, and I want that progress to continue until the day when we have cures for all retinal diseases, it is important to me that the Foundation be part of my lasting legacy.”
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