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Living With Usher Syndrome: Practicing, Prioritizing, and Protecting Your Mental Health
Living and Thriving WellnessIn this deeply personal reflection, Rebecca Alexander, LCSW-R, MPH, RYT, shares the emotional journey of living with Usher syndrome—not as a single moment of diagnosis, but as an ongoing evolution of identity, loss, and resilience. Drawing from her experience as a psychotherapist, she offers powerful insights and coping tools for navigating grief, preserving connection, and embracing the full complexity of the human experience.
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Foundation News
The Foundation Fighting Blindness develops strategic partnership with Alma, a network of 25,000 mental health professionals dedicated to simplifying access to high-quality, affordable mental healthcare.
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Navigating Mental Health Challenges in the Blind and Low Vision Community
Living and Thriving WellnessFor individuals living with blindness or low vision, each day can bring unique challenges—from navigating the physical world to managing the emotional toll of vision changes.
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Celebrating National DNA Day with Dr. Benjamin Bakall
Beacon StoriesApril 25 is National DNA Day, commemorating the completion of the Human Genome Project and the discovery of DNA’s double helix. To celebrate, we’re spotlighting Dr. Benjamin Bakall, a retinal specialist and ophthalmologist at Associated Retina Consultants in Phoenix, Arizona. Dr. Bakall’s dedication to genetics and patient care highlights the importance of genetic testing in advancing treatments and cures for inherited retinal diseases.
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Resources for individuals to use to contact their congress members about the policy changes with NIH.
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Foundation News
The partnership will formalize an ongoing commitment by both companies to accelerate the development of treatments and cures for retinal diseases, while prioritizing a patient-centric approach.
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Atsena Receives $150 Million in New Financing to Advance XLRS and Preclinical Gene Therapy Programs
Research NewsThe company has reported encouraging results from its LCA1 and XLRS gene therapy clinical trials.
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Join us for upcoming events focused on emotional well-being, connection, and support for the blind and low vision community. Whether in-person or virtual, these gatherings offer a space to learn, share, and explore mental health topics together.
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Whether you’re supporting someone with vision loss or looking to deepen your own understanding, these resources — developed in collaboration with the blind and low vision community — are designed to help therapists provide thoughtful, informed care.
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This collection of articles and videos offering guidance, expert perspectives, and practical strategies to help individuals and families navigate the emotional landscape that often comes with a diagnosis.
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