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Displaying 261–270 of 1070 results
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Jun 21, 2023
Dan Day - Making a Difference Now and for Future Generations
“Because I have seen such tremendous progress over the years, and I want that progress to continue until the day when we have cures for all retinal diseases, it is important to me that the Foundation be part of my lasting legacy.”
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Jun 20, 2023
“My husband and I have not been able to be significant Foundation supporters during our lifetimes,” she said, “but I would be honored to leave this gift as part of my legacy.”
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Jun 19, 2023
Beyond Labels: The Inspiring Journey of a Refsum Disease Advocate
After years of seeking answers, Alan Gunzburg was formally diagnosed with Refsum disease, a rare genetic disorder. Drawing on his unique journey, Alan sheds light on the obstacles he’s faced and how his experience motivated him to make a positive impact in the lives of others.
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Jun 16, 2023
Eye on the Cure Podcast | Episode 48: Jami Kern, PhD
June 16, 2023. Jami Kern, PhD, chief clinical officer at Nacuity Pharmaceuticals, talks with host Ben Shaberman about NACA, the company’s emerging gene-agnostic therapy for Usher syndrome and retinitis pigmentosa in a Phase 2 clinical trial in Australia. Their conversation includes a discussion about oxidative stress, which NACA is designed to mitigate, and timing for the efficacy readout from the Phase 2 study.
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Jun 12, 2023
Beacon Therapeutics to Advance XLRP, Cone-Rod Dystrophy, and Dry AMD Gene Therapies
An emerging XLRP gene therapy acquired from AGTC is the company’s lead clinical program
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Jun 9, 2023
The Retinal Research Community Mourns the Loss of Retinal Research Pioneer Thierry Léveillard
Dr. Léveillard helped discover and develop a gene-agnostic, cone-preserving therapy for retinitis pigmentosa that’s moving into a clinical trial.
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Jun 5, 2023
Breaking Barriers as an Attorney With Usher Syndrome
Tara is a woman of extraordinary talents. A beloved twin sister, mother of two, and wife of 10 years, Tara leads a fulfilling life dedicated to advocating for others through law.
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Jun 2, 2023
Eye on the Cure Podcast | Episode 47: Kari Branham
June 2, 2023. Kari Branham, a genetic counselor with Kellog Eye Center at the University of Michigan, talks to host Ben Shaberman about a variety of topics related to genetic testing and counseling for people with inherited retinal diseases. Their conversation includes discussion of: common misconceptions about genetic testing, variants of unknown significance, when re-testing makes sense, and when and if family members should be tested.
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Jun 1, 2023
Coave Reports Encouraging Phase 1/2 Clinical Trial Results for PDE6B Gene Therapy
The company is expanding the trial to enroll younger patients with less advanced disease
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May 25, 2023
Eric Ringham is a retired senior editor at Minnesota Public Radio News, where he supervised arts and education coverage. Before joining the MPR staff in 2009, he completed almost 30 years at the Star Tribune in Minneapolis, serving most of that time as commentary editor. Ringham also works part-time as a voice and stage actor. He and his spouse, Ann Wagner, live in south Minneapolis.