![](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBYQT09IiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--84bc8093a872b9fcdc53ab135cef768484c28e60/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdERG9MY21WemFYcGxTU0lOTXpJd2VERTRNRjRHT2daRlZEb0pZM0p2Y0VraUVETXlNSGd4T0RBck1Dc3dCanNHVkRvTVozSmhkbWwwZVVraUMyTmxiblJsY2dZN0JsUTZESEYxWVd4cGRIbHBWVG9LYzNSeWFYQlVPZzVwYm5SbGNteGhZMlZKSWdsTWFXNWxCanNHVkRvTFpHVm1hVzVsU1NJZWFuQmxaenBtWVc1amVTMTFjSE5oYlhCc2FXNW5QVzltWmdZN0JsUT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--daee5f4cd191d67586af9b48495fbde7d4763d64/Doctor-Visit.png)
Información para pacientes recién diagnosticados y sus seres queridos
El diagnóstico de una enfermedad de degeneración retiniana a menudo es algo abrumador. Pero si tú o un ser querido han sido recientemente diagnosticados con una condición retiniana heredada o una degeneración macular relacionada con la edad (AMD), entrar en contacto con la Foundation Fighting Blindness es una gran manera de educarse, administrar mejor tu condición, y encontrar ayuda.
Aquí hay algunos útiles pasos que puedes tomar para iniciar un camino positivo hacia adelante:
1. Learn about your disease
![Illustration of hands typing on a keyboard](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBbHdMIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--8227f787a5a204252ead70affe1d4bb37f7d4f4c/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdDam9MY21WemFYcGxTU0lOTXpJd2VETXlNRDRHT2daRlZEb01jWFZoYkdsMGVXbFZPZ3B6ZEhKcGNGUTZEbWx1ZEdWeWJHRmpaVWtpQ1V4cGJtVUdPd1pVT2d0a1pXWnBibVZKSWg1cWNHVm5PbVpoYm1ONUxYVndjMkZ0Y0d4cGJtYzliMlptQmpzR1ZBPT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--6baaa23813f136d06eefac4189cdaa8d448d7d47/Keyboard2.png)
The Foundation’s website, FightingBlindness.org, provides a wealth of information in different forms such as articles, videos, and podcasts. The Retinal Education section provides disease-specific information, and you can find out about ongoing clinical trials and potential cures in our Research section.
2. Find a specialist
![Illustration of magnifying glass and eye icon](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBbDBMIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--e54ce648ed010a739eb23c7bf1d3ea60a1e51699/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdDam9MY21WemFYcGxTU0lOTXpJd2VETXlNRDRHT2daRlZEb01jWFZoYkdsMGVXbFZPZ3B6ZEhKcGNGUTZEbWx1ZEdWeWJHRmpaVWtpQ1V4cGJtVUdPd1pVT2d0a1pXWnBibVZKSWg1cWNHVm5PbVpoYm1ONUxYVndjMkZ0Y0d4cGJtYzliMlptQmpzR1ZBPT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--6baaa23813f136d06eefac4189cdaa8d448d7d47/FindEye2.png)
There are some Retina Specialists who see and study patients on a regular basis. These experts are often better able to:
- Manage any complications.
- Discuss your prognosis.
- Conduct appropriate tests and exams.
- Suggest potential clinical trials for emerging therapies.
3. Consider genetic testing
![Illustration of DNA Strand](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBbDRMIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--5cde307eabf2a02d13c4c4bb109642479969b02b/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdDam9MY21WemFYcGxTU0lOTXpJd2VETXlNRDRHT2daRlZEb01jWFZoYkdsMGVXbFZPZ3B6ZEhKcGNGUTZEbWx1ZEdWeWJHRmpaVWtpQ1V4cGJtVUdPd1pVT2d0a1pXWnBibVZKSWg1cWNHVm5PbVpoYm1ONUxYVndjMkZ0Y0d4cGJtYzliMlptQmpzR1ZBPT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--6baaa23813f136d06eefac4189cdaa8d448d7d47/DNAStrand2.png)
Researchers have identified more than 351 genes associated with retinal degenerative diseases.
- Gives you a definitive diagnosis for which disease is causing vision loss.
- Confirms the inheritance pattern – that is, which family members may be at risk of having or inheriting the condition.
- Helps you qualify for clinical trials of emerging therapies. Some studies may require a genetic diagnosis.
Visit the Genetic Testing section of the Foundation’s website for more information.
4. Join the My Retina Tracker Register
![Foundation Fighting Blindness My Retina Tracker Registry logo](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBbUVMIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--3174c5b1a0d9aea07934b3922aa675cea4f265a2/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdDam9MY21WemFYcGxTU0lOTXpJd2VETXlNRDRHT2daRlZEb01jWFZoYkdsMGVXbFZPZ3B6ZEhKcGNGUTZEbWx1ZEdWeWJHRmpaVWtpQ1V4cGJtVUdPd1pVT2d0a1pXWnBibVZKSWg1cWNHVm5PbVpoYm1ONUxYVndjMkZ0Y0d4cGJtYzliMlptQmpzR1ZBPT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--6baaa23813f136d06eefac4189cdaa8d448d7d47/My-Retina-Tracker-Main.png)
My Retina Tracker® Registry (the Foundation's patient database) provides valuable information and data on IRDs to pre-screened researchers and companies for:
- Developing therapies.
- Recruiting for clinical trials.
- Performing other disease-related studies.
5. Get connected with our communities
![Map identifying states with Foundation Chapters](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBbDhMIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--4a10a4685d0a9c2853992ca92dbb9b5f174bc42f/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdDam9MY21WemFYcGxTU0lOTXpJd2VETXlNRDRHT2daRlZEb01jWFZoYkdsMGVXbFZPZ3B6ZEhKcGNGUTZEbWx1ZEdWeWJHRmpaVWtpQ1V4cGJtVUdPd1pVT2d0a1pXWnBibVZKSWg1cWNHVm5PbVpoYm1ONUxYVndjMkZ0Y0d4cGJtYzliMlptQmpzR1ZBPT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--6baaa23813f136d06eefac4189cdaa8d448d7d47/ChapterMap2.png)
The Foundation maintains a network of Chapters around the U.S. and holds seminars and meetings that provide information on research, low vision resources, and other helpful topics. Joining a Chapter is a great way to meet other people and families with blinding diseases in your area who can provide support and information on local resources.
Whether you live with a blinding retinal disease or have a family member or friend, connecting directly with an individual through our Foundation Fighting Blindness Peer Guide Program, will provide you the valueable resources offered by the Foundation.
6. Stay informed
![Orange circle with a white illustrated envelop in the middle](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBbUFMIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--95004648e9b926102a3230694a37d9e81a3031e2/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdDam9MY21WemFYcGxTU0lOTXpJd2VETXlNRDRHT2daRlZEb01jWFZoYkdsMGVXbFZPZ3B6ZEhKcGNGUTZEbWx1ZEdWeWJHRmpaVWtpQ1V4cGJtVUdPd1pVT2d0a1pXWnBibVZKSWg1cWNHVm5PbVpoYm1ONUxYVndjMkZ0Y0d4cGJtYzliMlptQmpzR1ZBPT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--6baaa23813f136d06eefac4189cdaa8d448d7d47/EnvelopeIcon2.png)
Stay up to date with the latest from the Foundation about research, clinical trials, events and more through our newsletter, podcasts and social media.
![coins in a jar on a wood table with a donation label on the jar](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBbGtMIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--e4d85d5d7ae5bc780ec6fe175da1c2fbab3673a0/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdERG9MY21WemFYcGxTU0lOTXpJd2VERTRNRjRHT2daRlZEb0pZM0p2Y0VraUVETXlNSGd4T0RBck1Dc3dCanNHVkRvTVozSmhkbWwwZVVraUMyTmxiblJsY2dZN0JsUTZESEYxWVd4cGRIbHBWVG9LYzNSeWFYQlVPZzVwYm5SbGNteGhZMlZKSWdsTWFXNWxCanNHVkRvTFpHVm1hVzVsU1NJZWFuQmxaenBtWVc1amVTMTFjSE5oYlhCc2FXNW5QVzltWmdZN0JsUT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--daee5f4cd191d67586af9b48495fbde7d4763d64/donationjar-crop.png)
Join the fight and help us accelerate our mission
Resource Download
Download Newly Diagnosed Patient Resources Infographic: 11x17
Download Newly Diagnosed Patient Resources Infographic: 11x17 (PDF, 1.49 MB)![](/rails/active_storage/representations/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaHBBdVFDIiwiZXhwIjpudWxsLCJwdXIiOiJibG9iX2lkIn19--77db34ca25f80f19eb35b3c54603bbb278ed086c/eyJfcmFpbHMiOnsibWVzc2FnZSI6IkJBaDdERG9MY21WemFYcGxTU0lOTWpBd2VESXdNRjRHT2daRlZEb0pZM0p2Y0VraUVESXdNSGd5TURBck1Dc3dCanNHVkRvTVozSmhkbWwwZVVraUMyTmxiblJsY2dZN0JsUTZESEYxWVd4cGRIbHBWVG9LYzNSeWFYQlVPZzVwYm5SbGNteGhZMlZKSWdsTWFXNWxCanNHVkRvTFpHVm1hVzVsU1NJZWFuQmxaenBtWVc1amVTMTFjSE5oYlhCc2FXNW5QVzltWmdZN0JsUT0iLCJleHAiOm51bGwsInB1ciI6InZhcmlhdGlvbiJ9fQ==--c7eddd6f61a07e30045fdb69eadab4a4b404edc6/New_Diagnosed_Infographic.png)