Recording from the June 7th EL-PFDD meeting.
Voice of the Patient Report
The Foundation Fighting Blindness first and foremost wishes to thank all those living with X-linked retinitis pigmentosa and their loved ones and caregivers who attended the June 7, 2022 meeting. Thank you for sharing your experiences and insights about living with XLRP. Thank you also to those who contributed by phoning in or contributing their insights online. We dedicate this report to all of you.