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Displaying 1–10 of 274 diseases results
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FDA accepts new drug application, prioritizes review for potential Stargardt treatment
Research NewsBelite Bio’s tinlarebant could become the first-ever approved treatment for Stargardt disease
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Beacon Stories
Since becoming involved with the Foundation Fighting Blindness 10 years ago, Brenda has become a dedicated leader, advocate and champion for the community. Whether welcoming someone newly diagnosed, leading the Fort Wayne Chapter or participating in a clinical trial to help advance research, Brenda has dedicated herself to creating more hope and opportunity for others.
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Advocacy Foundation News
Biomedical research grants should be awarded based on scientific peer review
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The Clinical Trial That Opened His World
Beacon StoriesAfter decades of adapting to vision loss from retinitis pigmentosa (RP), Manny Fernandez became one of the first people to receive an experimental gene therapy in a clinical trial. The experience not only restored a small part of his peripheral vision but also renewed his hope for the future and inspired him to encourage others to consider clinical trials, too.
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Sepul Bio completes clinical trial enrollment for its USH2A retinitis pigmentosa treatment
Research NewsUltevursen from Sepul Bio progresses through phase 2b safety and efficacy clinical trial
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FDA approves Lumvoa, a new treatment for thyroid eye disease
Research NewsApproval gives patients an additional option to manage TED symptoms
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Living Life Through My Eyes: My Journey with XLRS
Invisible DisabilityThere are moments when I wish I could see the world the way everyone else does. But I’ve realized that focusing on what I’ve lost only takes away from what I still have. XLRS may affect my eyesight, but it doesn’t define who I am.
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Belite Bio Submits New Drug Application to FDA for its Stargardt Treatment
Research NewsTinlarebant becomes first Stargardt treatment submitted to FDA for approval
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Invisible Disability
Life is inherently uncertain, but what happens if we embrace that? Trust yourself and your intuition. My strength is for me to define, no one else.
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Beacon Stories
Tamar Bresge is an artist, writer, and educator living with retinitis pigmentosa (RP) due to Usher syndrome. She reflects on her vision loss journey from hiding her diagnosis to embracing it as an inseparable part of her identity — and how her work in art, writing, and teaching has become a way to create the visibility and connection she once needed herself.
