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Jul 26, 2024
Eye on the Cure Podcast | Episode 70: Karen Petrou
Karen Petrou, the new board chair at the Foundation, talks to host Ben Shaberman about her vision for the Foundation moving forward. Karen has been an active director on the Foundation’s board for nearly two decades. She is co-founder and managing partner of Federal Financial Analytics, a firm providing analytical and advisory services on legislative, regulatory, and public-policy issues affecting financial services companies. Karen has RP and lives in Washington, DC, with her guide dog, Ike.
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Jul 12, 2024
Eye on the Cure Podcast | Episode 69: Dr. Francois Paquet-Durand
Francois Paquet-Durand, PhD, a professor from the University of Tübingen and co-founder of the company Mireca, talks to host Ben Shaberman about the long journey of an emerging, Foundation-funded drug for the treatment of certain forms of retinitis pigmentosa. The episode highlights the challenges that scientists often encounter when developing a drug for a retinal disease, and the persistence and tenacity that are required to keep it moving forward.
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Jun 28, 2024
Eye on the Cure Podcast | Episode 68: Dr. Michael Telias
For this episode of Eye on the Cure, Michael Telias, PhD, an assistant professor at the University of Rochester in New York, talks with host Ben Shaberman about forthcoming clinical trials to evaluate the FDA-approved drug disulfiram (aka, Antabuse) for improving vision in people with retinitis pigmentosa and other retinal diseases. Disulfiram was originally developed to deter people from abusing alcohol.
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Jun 27, 2024
Karen Petrou Appointed as Board Chair of the Foundation Fighting Blindness
David Brint retires after eight years of distinguished service; Petrou to lead effective July 1, 2024.
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Jun 7, 2024
Eye on the Cure Podcast | Episode 67: Dr. Peter Campochiaro
Dr. Peter Campochiaro, a clinician-scientist and the Eccles Professor of Ophthalmology and Neuroscience at the Johns Hopkins University School of Medicine, talks to host Ben Shaberman about N-acetylcysteine (NAC), a drug that shows promise for preserving cone vision (central vision and acuity) in people with retinitis pigmentosa. The powerful antioxidant has moved into a 30+ site, Phase 3 clinical trial called NAC Attack.
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May 30, 2024
Recording Available: Foundation Insights Forum – May 23, 2024
The Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the blinding diseases community. The call took place on May 23, 2024.
The guest speaker for this call included Rachelle Lin, OD, MS, FAAO, associate professor, Southern California College of Optometry at Marshall B. Ketchum University, where she teaches low vision rehabilitation and genetics.
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May 24, 2024
Eye on the Cure Podcast | Episode 66: Peter Wallsten
Peter Wallsten, a veteran newspaper journalist and head of investigative reporting at The Washington Post, talks to host Ben Shaberman.
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May 22, 2024
Advancing Research Solutions for PRPH2-Associated Retinal Diseases.
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May 17, 2024
Foundation Fighting Blindness to Host VISIONS 2024 Conference
The global conference, held on June 21–22, is dedicated to fostering connection, learning, and empowerment for individuals and families impacted by blinding diseases.
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May 15, 2024
Empowering Healthcare Providers and Patients with Genetic Testing and Genetic Counseling Solutions