Displaying 271–280 of 858 results
Jul 19, 2021
Nanoscope Therapeutics Launches Phase 2b Clinical Trial for Optogenetic Therapy
While the trial is for people with RP, the company hopes it will also benefit people with other retinal degenerative diseases
Jul 12, 2021
The faces behind RP Hope, Save Sight Now, and Sofia Sees Hope are all immensely dedicated to their nonprofit’s missions. The inspiration behind these organizations is similar, but their story and commitment are uniquely personal.
Jul 12, 2021
BioBonds in New York Times: Ask Congress to Support Biomedical Research for Treatments and Cures
Karen Petrou invented a new funding model for curing blindness. Proposed legislation aims to apply it to medical research more generally.
Genetic Testing Frequently Asked Questions
A genetic diagnosis can provide many benefits to people with inherited retinal diseases including: clarification of a clinical diagnosis, determination of the disease inheritance pattern within the family, and identification of clinical trials and therapies that may be appropriate for the patient.
Jul 8, 2021
Fighting RP on the Foundation’s Frontline
Michelle Glaze, the Foundation’s associate director of professional outreach, shared her personal story of being diagnosed with retinitis pigmentosa (RP) in the film ‘Decoding disease.‘ In her own words, Michelle also describes her journey with genetic testing and the Foundation Fighting Blindness’ impact on her life.
Jun 25, 2021
AGTC Reports Encouraging Results from Phase 1/2 Gene Therapy Clinical Trial for Achromatopsia (CNGB3 Mutations)
The company is planning a late-stage trial for its achromatopsia (CNGB3) gene therapy.
Jun 22, 2021
Grace Potter Teams up with the Foundation Fighting Blindness and Two Blind Brothers for "Music to our Eyes" Livestream Music Series
This June 30th exclusive conversation and acoustic performance by Grammy-nominated rocker Grace Potter will raise awareness and funds to find treatments and cures for blinding diseases.
Jun 21, 2021
Blind YouTuber Finding His Spot in Life
YouTuber Sam Seavey was diagnosed with Stargardt disease when he was just 11 years old. Sam didn’t fully accept his visual impairments until his early 30s. Now he’s helping others through “The Blind Life,” which is currently the most extensive resource for assistive technology on the internet.
Jun 15, 2021
Biogen’s Phase 3 Clinical Trial for its Choroideremia Gene Therapy Doesn’t Meet Endpoints
Additional results from the trial will be reported at a future scientific meeting
Jun 15, 2021
Two Blind Brothers Hosts Foundation Fighting Blindness Virtual Gala "Night for Sight"
This virtual event on June 24, featuring entertainment from Sheryl Crow, will raise awareness and funds to find treatments and cures for blinding diseases.