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The Foundation Fighting Blindness is a beacon for those affected by blinding retinal diseases. Our public service announcement campaign focuses on empowerment and showcases the idea that no matter an individual’s diagnosis, it’s their drive that fuels them to pursue their passion and interests. Collectively, we are stronger together – as a community.
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Oct 2, 2019
The program will offer patients with inherited retinal disease no-cost genetic testing and genetic counseling in the United States. Look for updated information on how to participate to be posted in mid-October, with program registration starting shortly thereafter.
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Oct 1, 2019
AGTC Reports Promising Interim Results for XLRP and Achromatopsia Gene Therapy Trials
AGTC used Foundation’s My Retina Tracker registry to recruit patients for trials
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Sep 30, 2019
The Show Must Go on Despite Vision Loss Due to Stargardts
Emmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”
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Sep 24, 2019
Consortium Genetically Tests 40 Percent of People in Israel with IRDs
Patient benefits from genetic testing for IRDs include confirmation of their clinical diagnosis, identification of the disease inheritance pattern and risk for other family members, and determination of human studies for emerging therapies that may be appropriate for them.
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Sep 20, 2019
Shawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.
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RSS feeds are a great way to stay up-to-date with new features on our site. Here’ show to use them!
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Sep 6, 2019
How Davida Regained Her Speed with Guide Dog Chubb
In honor of National Guide Dog Month this September, Davida is sharing her experience with the Guide Dog Foundation for the Blind and how she found a perfect match in her new guide dog, Chubb.
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Aug 19, 2019
Jen Walker was diagnosed with retinitis pigmentosa at 14 years old and didn’t feel ready to meet others with retinal diseases until many years later. Jen now wants to connect with others and raise awareness for the fighting blindness community.
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Aug 16, 2019
Foundation Fighting Blindness Investing Nearly $6.5 Million in New Grants
The newly funded research efforts include several therapies that have strong potential to treat a wide range of inherited retinal diseases.