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Beacon Stories
Jen Walker was diagnosed with retinitis pigmentosa at 14 years old and didn’t feel ready to meet others with retinal diseases until many years later. Jen now wants to connect with others and raise awareness for the fighting blindness community.
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Foundation Fighting Blindness Investing Nearly $6.5 Million in New Grants
Foundation NewsThe newly funded research efforts include several therapies that have strong potential to treat a wide range of inherited retinal diseases.
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Research News
The treatment focuses on the P23H mutation in the RHO gene, which is the most prevalent variant causing adRP in the US and affects approximately 2,500 people.
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The PPA is designed to support collaborative, multi-disciplinary, research studies that engage investigators with different expertise and resources. The PPA is intended to enable studies that are too large or complex for a single investigator to undertake in a reasonable amount of time and to address gaps in our current knowledge or therapeutic options.
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Vision and Eye Health Awareness Calendar
Many different blindness-related awareness campaigns occur throughout the year. Not all of them are coordinated by the Foundation Fighting Blindness; however, we do support efforts to create a greater awareness of blindness.
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Individual Investigator Research Award (IIRA)
Individual Investigator Research Awards are designed to concentrate research in areas with the greatest potential to move toward treatments and cures for the inherited orphan retinal degenerative diseases and dry age-related macular degeneration. This award provides approximately $100,000 per year up to three (3) years. These opportunities seek candidates that hold a Ph.D., M.D., M.D./Ph.D., D.M.D., D.V.M., D.O., O.D., or equivalent degree and have a faculty position or equivalent at a domestic or foreign: non-profit organization, or public or private institution, such as a university, college, medical school, hospital, research institute, or laboratory. Individuals from underrepresented racial, ethnic and gender groups, as well as individuals with disabilities, are always encouraged to apply.
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Ted and Elaine Welp Enhanced Career Development Program Award (Enhanced CDA)
Objective/Goal: The objective of this program is to support the recruitment and retention of a strong pool of physician scientists with a commitment to clinical research on these diseases. Support and protected time will be provided to individuals with M.D. and M.D. /Ph.D. degrees for career development in clinical research leading to research independence in the field of retinal degenerative diseases. This program supports up to two mid-senior level faculty for three (3) years. $170,000/year
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Career Development Program (CDA)
Objective/Goal: The goal of this Program is to facilitate advances in laboratory and clinical research, to elucidate the mechanisms for the etiology and pathogenesis of retinal degenerative diseases and to develop innovative strategies to prevent, treat and cure these diseases. This program supports up to five junior-level faculty for five (5) years. $75,000/year
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Hannah Dreams Big Despite Vision Loss
Beacon StoriesHannah has always had dreams of starting her own fashion line. And despite being diagnosed with retinitis pigmentosa at the age of 15, she recently began an intimate company, Watson & Wilma.
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Clinical Research Fellowship Award (CRFA)
Objective/Goal: The program will provide funding for post-residency clinical fellowships in inherited orphan retinal degenerations. The goal is to increase the number of clinician-scientists with expertise and commitment to provided clinical care to patients with inherited orphan retinal degenerations. This program supports up to three post-residency clinicians for one (1) year. $65,000/year
