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Rewriting the Narrative as the First Black Deaf-Blind Journalist
Beacon StoriesSteven McCoy has made history as the first black deaf-blind journalist in the world, as he was recently diagnosed with Usher syndrome after a lifelong struggle with hearing loss. Equipped with a passion for storytelling and advocacy, he now uses his voice to create lasting change within the entertainment industry and deaf-blind community.
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Eye on the Cure Podcast | Episode 41: Dean Bok, PhD
Eye on the CureFebruary 24, 2023. Dean Bok, PhD, a distinguished professor and renowned researcher at UCLA, talks with host Ben Shaberman about his pivotal discovery in the late 1960s of the daily renewal process for photoreceptors in the retina and other early, groundbreaking discoveries about retinal diseases.
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Foundation Fighting Blindness to Host their Spring VisionWalks
Foundation NewsThese VisionWalk events taking place this spring will raise awareness and fund research finding treatments and cures for blinding retinal diseases.
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The Foundation Fighting Blindness Chapter network brings people together across the country to join in fighting blinding retinal diseases. Our family of volunteers and leaders stand up for those impacted by blinding diseases.
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Research News
Geographic atrophy (GA) is the advanced form of dry age-related macular degeneration (AMD) which causes blindness in one million people in the United States and 5 million worldwide.
This is the first time that a treatment has been approved for this leading cause of blindness.
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A Love Without Limits: How John and Min Conquer Blindness Together
Beacon StoriesIn honor of Valentine’s Day, the Foundation Fighting Blindness brings you a special edition of our Beacon Story series, which covers the unique journey of visually impaired couple John and Min.
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The Foundation Makes an Impact on Retinal Research
Foundation NewsThe Foundation Fighting Blindness’ long-term impact on moving the inherited retinal disease field forward towards treatments and cures.
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Eye on the Cure Podcast | Episode 40: Rebecca Alexander
Eye on the CureFebruary 10, 2023. Rebecca Alexander talks candidly with host Ben Shaberman about her journey with Usher syndrome. Reflecting on her own experiences, she discusses how people with vision loss and their loved ones can practice good emotional care and advocate for their needs.
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Foundation Fighting Blindness to Host PRPH2 and Associated Retinal Diseases Workshop
Foundation NewsSession to have special translational research emphasis on PRPH2 and inherited macular dystrophies.
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Disease
Mutations in PRPH2 are a relatively common cause of several inherited retinal degenerations, including: retinitis pigmentosa (RP), pattern macular dystrophies (PMDs), cone-rod dystrophies (CRDs), and central areolar choroidal dystrophy (CACD).
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