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Displaying 201–210 of 1069 results
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Feb 6, 2024
Foundation Fighting Blindness Launches GYROS, a Natural History Study for People with Gyrate Atrophy
Gyrate atrophy is an inherited retinal disease—causing progressive vision loss. GYROS results will help researchers design clinical trials for an emerging gyrate atrophy gene therapy.
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Feb 5, 2024
Foundation’s Reach Inspires Partnership for Nixon Family
After Janine’s diagnosis of an IRD caused by a mutation of the PRPH2 gene, she and her husband set out to learn and help all they could. So they started working with the Foundation Fighting Blindness and have launched the ‘PRPH2 and Associated Retinal Degenerations Program.’
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Feb 2, 2024
Eye on the Cure Podcast | Episode 61: Dr. Jose Sahel
Dr. Jose Sahel, one of the most honored and accomplished leaders in the retinal disease research space, talks with host Ben Shaberman about his establishment and leadership of renowned ophthalmology clinical research centers at the University of Pittsburgh Medical Center and Institut de la Vision in Paris. They also discuss emerging inherited retinal disease therapies from SparingVision, a biotech co-founded by Dr. Sahel.
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Feb 1, 2024
Ascidian to Launch Clinical Trial for Stargardt Disease RNA Editing Therapy
ACDN-01 is the only genetic medicine entering clinical development for Stargardt disease.
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Jan 22, 2024
Blind Advocate Triumphs as a Hockey Pioneer
Josh Schneider is a former teacher and student-athlete whose life took an unexpected turn due to an optic nerve condition. Years after receiving his diagnosis, Josh transformed his passion for sports into a platform for advocacy. Today, he thrives as a blind hockey player, defying expectations and leading two foundations committed to raising awareness and providing support to blind hockey players.
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The goal of Envisioning a Path to Hope is to expand connections with eye care professionals all over the U.S. This important initiative will provide an opportunity for all of our volunteers and partners to share the Foundation with eye care professionals within their personal network.
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Jan 19, 2024
Eye on the Cure Podcast | Episode 60: Justin Kauflin
Justin Kauflin, a renowned jazz pianist who lost his vision as a boy, talks to host Ben Shaberman about his extensive touring, numerous collaborations, and close friendship with legendary trumpeter Clark Terry. Their story was captured in the hit documentary film Keep On Keepin’ On. Justin became a jazz pro at the age of 14, toured globally with Quincy Jones, and was voted jazz artist of the year by VEER magazine.
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Keeping us informed of your legacy intensions helps the Foundation Fighting Blindness plan our investments in retinal disease research.
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Live Stream: Dry AMD-Patient Focused Drug Development
The purpose of this meeting is to share with key FDA officials and other stakeholders the journey of dry AMD patients and their caregivers across the lifespan, current unmet needs, prognosis, and current standards of care. We invite you, people living with dry AMD and caregivers, to participate in a live discussion with drug developers, researchers, and regulators, as well as healthcare policy makers and payors for purposes of informing clinical trial design and benefit-risk decision making for evaluating and approving treatments for this disease.
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The Foundation encourages individuals and teams from all scientific disciplines that have ideas geared toward eliminating inherited retinal degenerative diseases to apply to a grant or award program. Individuals from underrepresented racial, ethnic, and gender groups, as well as individuals with disabilities, are always encouraged to apply.