Second-Person Personal Vision-loss Story

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In honor of Blindness Awareness Month this October, I wanted to share my story of vision loss. Feel free to share this with others to help raise awareness about blinding retinal diseases.

I’ve decided to share my vision with friends and family this October in honor of Blindness Awareness Month, because I believe it is important to raise awareness about blinding retinal diseases.

I would like to share my vision with you because some of you may not realize that I live with a retinal disease that impairs my vision. Since October is Blindness Awareness Month hopefully you will help me spread the word to raise awareness.

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His/Her/Their vision loss is due to...

Achromatopsia, which causes loss of visual acuity as well as central vision, color vision and vision in lighted conditions.

Bardet-Biedl Syndrome, which causes progressive loss of night and peripheral vision from retinitis pigmentosa.

Best Disease, which causes macular degeneration and the loss of central vision, visual acuity and color perception.

Chrorodermia, which causes progressive vision loss, starting with the peripheral vision and later progressing to the central vision.

Leber Congenital Amaurosis (LCA), which causes vision loss in early childhood from the degeneration or dysfunction of photoreceptors.

Macular Degeneration, one of the most common forms of vision loss, which causes blurred or reduced vision as a result of thinning of the macula.

Retinitis Pigmentosa (RP), which causes decreased vision in low light as well as the loss of side vision, also known as tunnel vision.

Refsum Disease, which auses vision loss, absence of smell, and a number of other symptoms

Usher Syndrome, which not only causes night-blindness and a loss of peripheral vision, but hearing loss and balance issues as well.

Stargardt Disease, an inherited form of Macular Degeneration, which causes decreased central vision loss.

X-Linked Retinoschisis, which causes vision loss due to splitting of the layers of the retina.

Other

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Here’s a few thought starters to help build your story. Choose one and type the full sentence below:

For me, blindness is…
For me, vision loss means…
I often don’t speak up about my vision because…
I wish… but I’m grateful that….
When I was first diagnosed with vision loss I felt...
My greatest challenge with vision loss has been...
Since my diagnosis I have learned...
One new thing about my vision is...

Teaser

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The cure for blinding retinal diseases like the one I have is right around the corner! The science is here. All that’s lacking is the funding. I believe that Foundation Fighting Blindness is at the forefront of this hope. If you are able to donate to Foundation Fighting Blindness in my honor as part of #ShareYourVision, please visit https://donate.fightingblindness.org/ShareYourVision.

Foundation Fighting Blindness is paving the way and on the forefront of finding treatments and cures for inherited retinal disease like mine. With the science outpacing the funds, it is critical that we continue to support the Foundation’s mission to keep pathbreaking research moving forward. Join the cause. Please donate at https://donate.FightingBlindness.org/ShareYourVision.

I would be deeply grateful should you consider making a donation to fund pathbreaking research to treat and cure blinding retinal diseases like mine. Please give to Foundation Fighting Blindness to advance this important mission at https://donate.FightingBlindness.org/ShareYourVision.

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Finished? Now #ShareYourVision

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