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Displaying 11–20 of 196 news results
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Feb 15, 2024
The May 9th gala will raise awareness and fund research leading to treatments and cures for blinding retinal diseases.
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Feb 13, 2024
The free, online event on March 20, 2024, will feature presentations from Rachel Huckfeldt, MD, PhD, Mass Eye and Ear, and Rachelle Lin, OD, Ketchum University.
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Feb 6, 2024
Foundation Fighting Blindness Launches GYROS, a Natural History Study for People with Gyrate Atrophy
Gyrate atrophy is an inherited retinal disease—causing progressive vision loss. GYROS results will help researchers design clinical trials for an emerging gyrate atrophy gene therapy.
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Feb 2, 2024
Eye on the Cure Podcast | Episode 61: Dr. Jose Sahel
Dr. Jose Sahel, one of the most honored and accomplished leaders in the retinal disease research space, talks with host Ben Shaberman about his establishment and leadership of renowned ophthalmology clinical research centers at the University of Pittsburgh Medical Center and Institut de la Vision in Paris. They also discuss emerging inherited retinal disease therapies from SparingVision, a biotech co-founded by Dr. Sahel.
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Jan 19, 2024
Eye on the Cure Podcast | Episode 60: Justin Kauflin
Justin Kauflin, a renowned jazz pianist who lost his vision as a boy, talks to host Ben Shaberman about his extensive touring, numerous collaborations, and close friendship with legendary trumpeter Clark Terry. Their story was captured in the hit documentary film Keep On Keepin’ On. Justin became a jazz pro at the age of 14, toured globally with Quincy Jones, and was voted jazz artist of the year by VEER magazine.
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Jan 5, 2024
Eye on the Cure Podcast | Episode 59: Dr. Robert MacLaren
Dr. Robert MacLaren, a world-renowned retinal surgeon, clinical trial investigator, and research lab leader at the University of Oxford, talks to host Ben Shaberman about the successes and challenges in retinal gene therapy development and clinical trials, as well as advances in robotics for improving retinal surgery outcomes.
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Dec 15, 2023
Eye on the Cure Podcast | Episode 58: Jason Comander
Jason Comander, Md, PhD, clinical researcher, surgeon, and director of the Inherited Retinal Disease Disorders Service at Mass Eye and Ear, talks to host Ben Shaberman about his administration of LUXTURNA gene therapy to RPE65 patients, his team’s re-analysis of vitamin A therapy for retinitis pigmentosa, and passion for retinal research and patient care.
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Dec 6, 2023
Recording Available: Foundation Insights Forum – November 30, 2023
The Foundation Fighting Blindness is pleased to provide a recording and full transcript of the Insights Forum, our quarterly conference call providing updates to the inherited retinal disease community. The call took place on November 30, 2023.
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Dec 1, 2023
Eye on the Cure Podcast | Episode 57: James Rath
James Rath, a renowned filmmaker and accessibility consultant, talks to host Ben Shaberman about his vision loss journey and travel documentary, Blindspots. The new streaming program, on CuriosityStream.com, follows James as he explores the globe in search of accessible adventures, remarkable blind personalities, and great food.
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Nov 29, 2023
Foundation Fighting Blindness Appoints Jeff Klaas as Chief Strategy and Innovation Officer
Klaas brings over twenty years of experience to lead strategies aimed at elevating engagement and revenue.