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Displaying 251–260 of 279 diseases results
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Dec 17, 2019
Ashlyn Experiences Joy in Day-To-Day Life After Sight Is Restored
Beacon StoriesAshlyn’s vision was restored following her treatment with the LUXTURNA gene therapy.
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Nov 27, 2019
Foundation NewsKnown as Pro-EYS, the study will help researchers design clinical trials for potential therapies
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Nov 22, 2019
Beacon StoriesDr. Marciello doesn’t let a Stargardt disease diagnosis get in the way of his twin passions: medicine and baseball.
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Oct 28, 2019
Visionary Artist Elijah Overcomes All Obstacles
Beacon StoriesElijah has always had an artist mind, and he hasn’t let his diagnosis with Stargardt disease hold him back from his passion for creating art.
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Oct 15, 2019
Rachel Wants to Raise White Cane Awareness
Beacon StoriesRachel Luehrs describes her journey of acceptance.
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Oct 11, 2019
The Bergstein’s Are Striking Out Blindness
Fundraiser Success StoriesThe Bergstein family has always been passionate about helping the Foundation Fighting Blindness.
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Oct 2, 2019
Foundation NewsThe program will offer patients with inherited retinal disease no-cost genetic testing and genetic counseling in the United States. Look for updated information on how to participate to be posted in mid-October, with program registration starting shortly thereafter.
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Sep 30, 2019
The Show Must Go on Despite Vision Loss Due to Stargardts
Beacon StoriesEmmy Award-Winning Writer and Performer Ellen Gould Weaves her Personal Experience with Stargardts Into Her New Musical, “Seeing Stars”
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Sep 20, 2019
Beacon StoriesShawn was diagnosed with Usher syndrome at a young age. Shawn now stays involved with the blind community and participates in his local blind hockey league. In his own words, he shares his journey at the Toyota-USA Hockey Disabled Hockey Festival.
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Sep 6, 2019
How Davida Regained Her Speed with Guide Dog Chubb
Beacon StoriesIn honor of National Guide Dog Month this September, Davida is sharing her experience with the Guide Dog Foundation for the Blind and how she found a perfect match in her new guide dog, Chubb.