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Foundation News
The partnership will formalize an ongoing commitment by both companies to accelerate the development of treatments and cures for retinal diseases, while prioritizing a patient-centric approach.
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Atsena Receives $150 Million in New Financing to Advance XLRS and Preclinical Gene Therapy Programs
Research NewsThe company has reported encouraging results from its LCA1 and XLRS gene therapy clinical trials.
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Scientific Advisory Board Resources
SAB members should use this site to access reviewer resources, directory, and stay informed on SAB policies and events.
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Eye on the Cure Podcast | Episode 84: How to Contact Congress
Eye on the CureIn this episode of Eye on the Cure, Jen Bernstein at Horizon Government Affairs, and Sharon King of Taylor’s Tale, talk to host Ben Shaberman about how to schedule and conduct a visit with your House Member in your local district to advocate for important issues. With federal eye research funding at great risk and a Congressional district work period coming in mid-April, now is an ideal time to schedule a visit with your House Member.
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Coping with a Vision Loss Diagnosis
Living and Thriving WellnessNewly-diagnosed patients frequently struggle with grief and depression, similar to losing a loved one. When managed using healthy coping methods and strategies, this is a natural and normal response to vision loss.
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Beacon Stories
Danielle has been navigating her retinitis pigmentosa for half of her life, but she’s never let it hold her back. Her journey with RP underscores the importance of perspective, community of her friends and family’s support, and the relentless pursuit of treatments and cures.
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Eye on the Cure Podcast | Episode 83: Michel Michaelides
Eye on the CureProfessor Michaelides talks about the extraordinary vision improvements for young blind children receiving gene therapy for LCA4
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Honoring the Legacy of Bob Reintsma: A Visionary in the Fight Against Blinding Diseases
Foundation NewsBob Reintsma was fiercely passionate about driving treatments and cures for blinding diseases for most of his life. The Foundation is extremely grateful for Bob’s dedication to our mission and legacy of generosity.
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Luxa Reports Vision Improvements in Clinical Trial of its RPE Stem Cell Therapy for Dry AMD
Research NewsPatients with worse vision at trial enrollment had greatest vision improvements.
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Building Bonds: Joy and Representation in Legos
Beacon StoriesIn her own words, Chloe shares how her bond with her brother Elliot has grown stronger over the years through their shared love of building Legos. Since Elliot’s diagnosis with Stargardt disease, he has faced significant vision loss, but they discovered accessible online Lego instructions, allowing them to continue their cherished hobby. Chloe hopes for a more accessible and understanding world where Elliot and others with vision loss can thrive.
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