Aug 19, 2019

Jen’s Journey with RP

Beacon Stories

Jen Walker was diagnosed with retinitis pigmentosa at 14 years old and didn’t feel ready to meet others with retinal diseases until many years later. Jen now wants to connect with others and raise awareness for the fighting blindness community.

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Jen Walker was diagnosed with retinitis pigmentosa (RP) at 14 years old and by 28 years old, she gave up her driver's license and got a white cane to help navigate. She lives in Columbus, Ohio with her husband and two daughters. Through the Foundation Fighting Blindness, Jen met other people with RP for the first time ever. This changed Jen's perspective and motivated her to connect with others and raise awareness for the blindness community. Jen and her husband, Kevin, are now the Columbus chapter leaders for the Foundation because they “want to be beacons of hope for those with blinding retinal diseases.”